Yesterday I felt human. What I think of as normal. I accomplished some research, some digital work, some house work, some cleaning. Today, it was difficult to get out of bed. I felt like someone smashed me with a huge weight.
A snow storm. Not even a big one. A good 10" of fluffy powder with on and off furious flurries. But it laid me flat most of the day.
This isn't uncommon for those of us with Ehlers Danlos Syndrome. EDSers often comment in online communities about how storm systems are exhausting, painful, and just plain confusing. You awaken with heavy limbs, barely able to care for yourself. Your muscles are in pain, joints so loose you worry about dislocations (or just keep popping bones back into place), and feel heavy.
Why? No one knows. Theories abound, mostly connecting the experience with barametric pressure. But no answer.
Today was a rare day that I could give in to the storm fatigue. I lay on the couch listening to an audio book and then a podcast. My body didn't want to move, but my brain stayed active. I also entertained myself by doing some needlepoint and crocheting a few dishcloths. Why, because it is mathematical and required very little movement. I know if I get bored I'll start moving, so I kept myself still by listening and creating.
Did it work? I don't know. I feel similar to how I did this morning. However, on a typical day like this I would have forced myself through a day and been a painful lump by evening. So, perhaps a little win, but definitely a little learning.
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